Thousands of children with Fetal Alcohol Syndrome are missing out on National Disability Insurance Scheme Benefits and funding due to the lack of specialists diagnosing and assessing the impact of the disorder.
Fetal Alcohol Syndrome is thought to affect approximately 5% of the population, with severity ranging from mild behavioural disturbances to severe brain impairment.
There are only a handful of specialists who diagnose and treat the illness, and can assess and qualify sufferers for NDIS funding, and as a result, families are left to suffer without support.